SIG Health - Healthcare Informatics and Health Info Technology

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Paper Type

Complete

Paper Number

1272

Description

Health information exchange (HIE) is vital to improving care delivery and outcomes, and patient consent is an important component of HIE. Existing consent processes that involve completing forms at a provider, along with poor interoperability between HIEs, give patients limited control of their consent management. We developed and deployed a survey to assess how people perceive the value of HIE, the importance of controlling access to their protected health information (PHI), and how they would prefer to manage consent for the exchange of their PHI. Given the option, 70% of the participants would prefer to use a consent application (app) to manage their consent. Based on the current U.S. HIE environment, we argue that the most viable architecture for implementing an HIE consent app would be a permissioned blockchain. We describe and illustrate a consent management app prototype that is blockchain-based as an effective alternative to current HIE consent practices.

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Aug 10th, 12:00 AM

Patient Consent for Health Information Exchange: Blockchain-driven Innovation

Health information exchange (HIE) is vital to improving care delivery and outcomes, and patient consent is an important component of HIE. Existing consent processes that involve completing forms at a provider, along with poor interoperability between HIEs, give patients limited control of their consent management. We developed and deployed a survey to assess how people perceive the value of HIE, the importance of controlling access to their protected health information (PHI), and how they would prefer to manage consent for the exchange of their PHI. Given the option, 70% of the participants would prefer to use a consent application (app) to manage their consent. Based on the current U.S. HIE environment, we argue that the most viable architecture for implementing an HIE consent app would be a permissioned blockchain. We describe and illustrate a consent management app prototype that is blockchain-based as an effective alternative to current HIE consent practices.

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